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Our Medical Advisors
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Bill Levinger, MD
Emergency Medicine
Pain
Management
and, head injury survivor
Kennawick, WA |
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Hugh R. MacMahon,
MD
Neurology, Sea, WA
Medical Advisor |
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Donate that car
get a tax break.
Prompt,
nation
wide pick-up |
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D. Mortz Inspirational
Award est. 2002 |
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Brain
damage
is forever, get involved. |
Sponsors make
this site possible |
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Introduction:
This
site is maintained by: Brain
Injury Resource Center --
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A non-profit clearinghouse founded and operated by brain injury activists
since 1985.
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If you have landed on this site it is probably because you have learned
that head injury is poorly understood, and you need expert guidance to
make sense of it.
Medical science has only
just begun to unravel the mysteries of brain injury.
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More questions remain than answers.
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Therefore, it stands to reason that the general public wouldn't have a
clue as to what they are in for.
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Consequently, when it happens to you, or someone you love, you find yourself
ill-equipped to deal with the sweeping, life changes it brings.
What to do; where do you
turn for help?
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A study by the National Institutes of Health found that 85% of brain
injury patients do not receive any treatment or counseling concerning the
long term difficulties caused by brain injury.
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That same study found that the high cost of rehab services has placed them
out of reach of many who would seek help.
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A related study showed that simple interventions could provide effective
work-arounds for many of the difficulties caused by brain injury.
You should know that, a Justice
Department investigation found that several leading head injury
rehab facilities had taken unfair and unlawful advantage of their patients.
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This shocking situation, points to the vulnerability of patients and their
families during this difficult time.
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This regrettable situation underscores the need for consumers to be wise
and wary, and that's where we come in.
Purpose:
The
purpose of this site is to share with you lessons we learned long ago.
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Our intention is help you avoid much of the grief
and loss of brain injury, and perhaps to inspire you to get involved.
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To achieve these goals we offer you the benefit of
our considerable knowledge and experience.
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Most importantly, we learned that pro-active involvement,
knowledge, self-awareness, and self-advocacy are key to quality of life
following brain injury.
Self-help:
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We strongly urge you to learn everything you can about brain injury
and its life-long effects.
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Learn about how it
affects you, and how to limit its impact on you.
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Set individual and family rehabilitation goals.
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Draft treatments
plans and timelines.
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Learn about your treatment,
and how it is supposed to benefit you.
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Check credentials
and track-records of professional service providers.
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Work hard to achieve your rehabilitation
goals.
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Embrace challenges, instead of giving up when thing things don't come easily.
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Take remedial and/or refresher course work in areas of your core competencies.
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Ask questions, search out information, and get answers.
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Thank those who
help you.
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Keep your Personal
Safety Net in good repair.
Healing:
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Acknowledge your losses,
give yourself time to grieve, and then pick up the pieces and move on with
your new life.
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Moreover, get to know and, learn to love your new
self.
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Re-affirm your values and priorities, and trust your instincts.
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If you do these things you will achieve your rehabilitation goals, get
the help you need, and make informed decisions.
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If you adopt and apply these practices your life will change for the better.
Our Goal:
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Our goal
is to help you
maximize your recovery.
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To achieve our goal we have placed much of what we've learned on this web
site.
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Its contents have been drawn from our personal experiences, along with
years of research and consultations with our medical
and legal advisors.
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We provide information on brain injury and the impairments caused by it,
as well as resources and support for dealing with it
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We
promote self-advocacy, and self-care, centered
around collaborative partnerships with family, loved ones, and professional
service providers.
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After you've been checked medically your next stop
is here.
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This is where you will find information on the brain, and how injury changes
brain functioning and behavior.
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This is where you'll find links to brain injury
resources, services, and support.
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Additionally, you will find guidelines for
choosing and evaluating professional services, as well as links to sites
to check out, and/or file complaints about doctors, lawyers, and rehab
facilities.
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This is where you can assess your own situation and learn effective interventions.
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Additionally, you'll find guidelines for creating and maintaining your
personal safety net.
Information on this site
is not designed to replace advice from physicians or other professionals.
Disclaimer
and Privacy Notice
About
this Site:
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This site was designed for those who want to learn
about the effects of brain injury in daily life.
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It is based on the premise that physically surviving brain injury is just
the first step in a lifelong process of adjustment and accommodation.
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Our intent is to give you the benefit of our considerable knowledge, skills
and talents.
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Our mission is to help you avoid some of the unnecessary losses and devastation
caused by the effects of brain injury.
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Meet
our consultants
Our clientele
includes the:
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America Academy of Neurology -- we assisted with
the development of their diagnostic and treatment guidelines
on Concussion
in Sports
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National Institutes of Health TBI Rehab Consensus
Conference Statement; Click on the following link to read our statement
on the long term effects of brain injury in daily life. NIH-TBI
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Federal
Interagency Conference on TBI 2000.
Consultation
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More
What's in it for you:
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We offer factual, authoritative information on brain injury, the impairments
caused by it and treatment
options.
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We provide self-tests, checklists, and strategies to meet the challenges
of living with brain injury.
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We empower you to know when you need help -- including self help -- and,
we enable you to find help and to make informed decisions concerning such
help.
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We bring together those seeking specialized, professional services with
those uniquely qualified to provide such services.
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We strive to advance understanding of brain injury and the impairments
that result from it.
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We encourage collaboration between consumers and professional service providers.
Additionally, we provide guidelines and checklists for selecting and monitoring
such services.
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We provide resource directories, of social services, and kindred souls
for chat and support.
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We promote prevention of brain injury.
How to use
this site
The site is divided into several major topics
see the navigation bar on the left side of the screen. On it you will
find information to help you achieve your rehabilitation goals. Topics
include:
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Learn about the brain and how injury affects brain functioning.
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Resources, including medical and rehabilitation
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Advocacy including life skills and legal resources.
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Additionally, you can learn about us and the services we offer
There are several
ways to access the wealth of information and resources on this site. The
best way to is to click on the: Tool
Kit link or the tool kit graphic below.
Use the scroll bar on that
page to view links to additional support and resources. These highly
recognizable navigational aids can be found on each page of this site.
You can browse the site and print out pages that
appeal to you.
The information and
resources on this site are designed to enhance
your brain power, and to change your life for the better.
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It achieves that goal by providing a framework for reconstructing lives
devastated by traumatic brain injury.
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This site was designed to serve a broad audience.
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To that end it provides information and resources on brain injury for the
individual, the family and the professionals that serve them.
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It provides information and resources on brain injury from the point of
injury to its effects on daily life.
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Other information and resources help you recognize and minimize its impact
on you and your family.
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Still other resources help you select and monitor professional, as well
as social services.
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Finally, it provides resources for those seeking expert guidance
and/or self-help options.
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| Over the years we have assembled considerable
resources and information concerning brain injury that we are in the process
of uploading, so bear with us. If you don't see what you're looking
for; e-mail us or give us a call 206-621-8558. |
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| This site is unmatched
in its breadth and depth, and still growing. If you find that you have
been helped by the information on this site help us keep this resource
alive and well for you. Donations |
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| We believe that
collaboration
between consumers and professional service providers will greatly reduce
the misery and waste of head injury. Additionally, we believe, that such
collaboration will lead to better treatments and perhaps, one day,
a cure. To that end we share our talents, skills, knowledge and personal
qualities to promote our goal of public empowerment. |
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| Although we appreciate your
comments, the large volume of e-mail sometimes makes it impossible to reply
to all messages. Go to FAQ
for answers to the most common e-mail questions |
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| How you can
help: To reach our
goals we need to hear from you. We want to know of your experience of
head injury. More importantly, we want to know of your experience of our
site. Tell us how well it worked for you. Additionally, tell
us, what you would
add;
as well as, what you would remove. We value your feedback. |
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| We
strive
to be the most extensive on-line directory of brain injury services
and products. If you know of a person, organization,
agency, or firm that should be listed, please
send it to us in an e-mail. |
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| We
are seeking - individual
and corporate sponsors - to
help underwrite both general
and targeted programs for Brain Injury
Resource Center. Such sponsorships would receive prominent
acknowledgment on our site, 206-621-8558 |
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| We
welcome inquiries from volunteers
with experience and skills in research,
grants writing, hypertext editing, computers, and basic organizational
management. |
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| What
to expect: This site is fluid, it
changes almost daily. While the basic content will remain the same;
you can expect to see regular additions, up dates, and where necessary
corrections. We strive to make your experience with us seamless and
cogent. We value your questions and feedback. We can be reached by e-mail
or telephone,
206-621-8558. |
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| While this site was designed primarily for traumatic
brain injury it contains information relevant to many types of brain injuries.
You'll find information on, and /or, links to resources for various neurological
disorders. Support
Groups |
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| The educational and charitable programs
of Head Injury Hotline
are made possible by the generous support of individual, and corporate
sponsors, and friends. |
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| There is no charge for the use of
this brain injury information, but if you find this information
useful and would like to make a contribution to our project, click
here. |
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This site was last updated
on:
10/21/09
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READ Our
Disclaimer
and Privacy notice before proceeding!
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